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Polyclinic Rehabilitation Institute, Toronto

2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11

4164771101

Polyclinic Rehabilitation Institute

2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11

4164771101

Toronto M3J 2C5 ON, Canada

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2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11 Tel: 4164771101

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Polyclinic Rehabilitation Institute is located at 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11, 2 Champagne Drive, Unit B11 4164771101 Toronto ON M3J 2C5 Canada

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Polyclinic Rehabilitation Institute

KeeogoTM for Inclussion Body Myositis

Exercise is beneficial for inclusion body myositis (IBM). Physical therapy and exercise can help maintain muscle function, improve aerobic capacity, and even increase muscle strength. PRI encourages all inclusion body myositis patients to see a physical therapist with experience in neuromuscular diseases.

Some patients experience psychological obstacles to exercise. Exercise can be a frustrating topic for many IBM patients, for 3 reasons:

1.Guilt

2.Fear that exercise will worsen the disease

3.Personal experience

Guilt

Some patients feel guilty because they don’t exercise. Family and friends who don’t understand the disease might tell you that you’d be fine if only you exercised enough. This is not true. Lack of exercise doesn’t cause IBM. Nothing you did or didn’t do caused you to get IBM. It’s not your fault. If you do exercise you’ll still have IBM, and your muscles will still eventually weaken. However, exercise can help. Exercise might improve your balance and decrease your risk of falling, prolong your ability to walk, and keep you independent longer. If you don’t like exercising, get creative and try to find some type of exercise that makes you feel good, something you can enjoy. Exercise not only helps your muscles, it can also boost your mood and attitude.

Fear

Doctors and physical therapists used to worry that exercise would actually worsen inclusion body myositis. They were concerned that exercise would aggravate muscle inflammation, especially since it is known that exercise can temporarily increase blood levels of muscle enzymes, such as creatine kinase. We now know that exercise is safe, but patients with long-standing IBM may be afraid of exercise because of what they were told 10 or 20 years ago. Also, some doctors may not be aware of the new attitude toward exercise, and may still caution their IBM patients to avoid exercise.

Personal Experience

Some people with inclusion body myositis say they’ve tried exercise, but it only makes things worse. If you’re in this group, perhaps you tried to do too much. Even healthy people who start a new exercise program are often over-enthusiastic in the beginning, and cause themselves pain and injury. This can be especially true if you used to be strong and fit but now have a muscle disease. Physical therapists and personal trainers, if they aren’t familiar with IBM, may be too aggressive in their recommendations when you’re just starting an exercise program. Go at your own pace. Start slowly. VERY slowly, if you’ve had problems in the past. Increase your exercise gradually. You might surprise yourself and find out that you can improve more than you expected.

Lifestyle Management

While the medical community still tries to figure out which therapy works best to cure IBM, a recent technological breakthrough called KeegoTM , allowed patients with PD to achieve a remarkable improvement in their lifestyle and overcome feelings of guilt and fear. Without the KeegoTM device, patients walked slowly, had to stop when taking stairs from exhaustion, had a difficult time picking up objects from the floor, exerted strenuous effort, when getting up from a chair to walk down the hall. Patients with IBM wearing a KeegoTM device were able to achieve healthy movement patterns during several clinical trials. The same patients were able to walk about quickly, had no trouble walking up or down the stairs, picked up objects from the floor with little effort, and were able to easily sit down, and get up from the seat without propping themselves up with their hands.

If you suffer from IBM, please see a specialist at the PRI clinic. They are specifically trained to properly introduce your body to the KeegoTM device, which will allow your body to achieve a remarkable improvement in your lifestyle. We’ll be more than glad to help you when you call or follow these links.

Tel:      (416) 477-1101

E-mail: reception@priclinic.com

Web:   www.priclinic.com

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